Snowed in...

These two were happy!

Buddy dog thought he was king of the hill (He's standing on top, note how far up the tree the snow is in the background.).Still can't believe the snow was that deep. We live in Delaware for crying out loud.

Silent acid reflux~ Prilosec compound working!

photo by Juliana Melnik

Started Prilosec compound yesterday for John. Evidently he has silent acid reflux and it is probably why we have been having pain associated with eating. After one day, John is a new man. We are so happy one of his problems is finely being resolved. 

Still waiting to hear from CHOP about scheduling his ERCP procedure. Wish we didn't have to do it, but we do.

BTW, Julie insisted that I give her a byline for the photo above or I couldn't use it.

Looks like we may be going to CHOP...

Well, it looks like we may have to go to CHOP in Philly for John's procedure. Still finding out all the details, but our insurance says the only way we could have clearance to go to JHH is if CHOP says they cannot do the procedure. Not sure what to think of all this. I think I'm going to choose NOT to think for a while.

I know this picture is sideways, but we are talking on the phone. John is practicing his breathy Hhhi. Julie may have taken this photo, not sure.

Anyway, still scheduled for Friday, but no clearance from insurance yet. May have to cancel and start all over.

Please keep us in your prayers.

Update...

Well, we have John's ERCP scheduled with JHH, but now our insurance is not accepted there and our insurance company says the procedure can be done at CHOP. It cannot. I guess we are in a holding pattern until things get resolved. Oh the joys of our healthcare system. 

Good ♡ news for John

John got great news from his cardiologist yesterday, his VSD is closing up on it own! We don't have to have a check up for another 18 months. We are soo happy.

Trying to schedule John's ERCP w/ Johns Hopkins. Insurance is not cooperating yet... More to follow later this week.

This pictorial was taken by Juliana with her new camera...

Nana & Pop-pop gave it to Julie for Christmas. She has taken over 200 photos with it! ugh. She's having a blast.

Dr. Patrick Okolo

Click on Dr. Patrick Okolo above and the link below will open up for you to view an interview with Dr. Okolo.
www.insidermedicine.com/archives/In_the_Spotlight_-_Dr_Patrick_Okolo_MD_MPH_1942.aspx