Silent acid reflux~ Prilosec compound working!

photo by Juliana Melnik

Started Prilosec compound yesterday for John. Evidently he has silent acid reflux and it is probably why we have been having pain associated with eating. After one day, John is a new man. We are so happy one of his problems is finely being resolved. 

Still waiting to hear from CHOP about scheduling his ERCP procedure. Wish we didn't have to do it, but we do.

BTW, Julie insisted that I give her a byline for the photo above or I couldn't use it.

Looks like we may be going to CHOP...

Well, it looks like we may have to go to CHOP in Philly for John's procedure. Still finding out all the details, but our insurance says the only way we could have clearance to go to JHH is if CHOP says they cannot do the procedure. Not sure what to think of all this. I think I'm going to choose NOT to think for a while.

I know this picture is sideways, but we are talking on the phone. John is practicing his breathy Hhhi. Julie may have taken this photo, not sure.

Anyway, still scheduled for Friday, but no clearance from insurance yet. May have to cancel and start all over.

Please keep us in your prayers.

Update...

Well, we have John's ERCP scheduled with JHH, but now our insurance is not accepted there and our insurance company says the procedure can be done at CHOP. It cannot. I guess we are in a holding pattern until things get resolved. Oh the joys of our healthcare system. 

Good ♡ news for John

John got great news from his cardiologist yesterday, his VSD is closing up on it own! We don't have to have a check up for another 18 months. We are soo happy.

Trying to schedule John's ERCP w/ Johns Hopkins. Insurance is not cooperating yet... More to follow later this week.

This pictorial was taken by Juliana with her new camera...

Nana & Pop-pop gave it to Julie for Christmas. She has taken over 200 photos with it! ugh. She's having a blast.

Dr. Patrick Okolo

Click on Dr. Patrick Okolo above and the link below will open up for you to view an interview with Dr. Okolo.
www.insidermedicine.com/archives/In_the_Spotlight_-_Dr_Patrick_Okolo_MD_MPH_1942.aspx

Road trip to Johns Hopkins coming up...

Looks like we will be visiting Johns Hopkins for the diagnostic ERCP that John needs. Dr. Furuya & Dr. Dunn of AI du Pont hospital have consulted w/ the ERCP specialist, Dr. Okolo from Johns Hopkins & they believe that John should have the procedure soon to figure out exactly what needs to be done to correct his common bile duct.

John is feeling fine, despite a head cold we picked up somewhere. No pain. His liver enzymes have returned to normal. His liver is not being damaged at this point and he does NOT have pancreatitis. Pancreatitis is probably the biggest risk of this diagnostic procedure. The skill of the Dr. preforming the test is directly related to the risk of getting pancreatitis.There will be a pediatric anethesia team for John. This will be what we will wait for to schedule the procedure.

BTW, the Celiac & cancer screens were negative. Yeah! Will post more as it comes to me. John will be in the best of care as far as I can tell.

Thank you for all your prayers and well wishes. We really do appreciate it all.